10 years of torture, children struggle with the disease.
However, no matter how ill he was, Ma Ying persisted in the fourth grade of primary school. Liu Yaling, the teacher in charge of the class, told the reporter that since the first grade, Ma Ying has been a child with excellent academic performance. Although she has a strange disease, she is strong. She often gnashes her teeth and suffers from pain after a class. When she can't stand it, she will signal to the teacher: "Teacher, I want to stamp my foot"-she uses this way to suppress and transfer unspeakable pain. In order to write neatly, the child never wears gloves. Every time he finishes his homework, his hand will be rubbed by a pencil, as if he had been punished. Looking at the child's painful expression, Mr. Liu's heart hurts. Because of illness, the child almost missed 10 minutes between classes. As long as they have violent contact with other children, the skin on their hands will break open and then become bloody.
Refuse to eat just because you don't go to the toilet.
Liu Yaling said that recently, she found that Ma Ying was often late for class, and the number of times she raised her hand in class increased significantly. I didn't know until I asked the child. Because of a strange disease, the child suffered from severe anal fissure and cried loudly every time he went to the toilet. In order not to go to the toilet, children began to refuse to eat and resist food, and their thin little arms looked like children of 4 or 5 years old. /kloc-for 0/0 years, the child's illness has shrouded the whole family in the shadow of poverty. Now, lack of money is not the biggest difficulty. The biggest difficulty is that there is no hospital or doctor to treat this strange disease.
Rare disease, children become butterfly babies.
According to Ma Ying's father Ma Shengpu, as long as the child's skin is slightly rubbed or bumped, it will blister or bleed. Both Xi and the big hospitals in Beijing gave the same conclusion: "epidermolysis bullosa". Doctors say that there is no specific treatment for this rare disease at present, and only careful nursing can protect the skin and prevent friction and oppression. Pustules and pains are often accompanied by patients, so children with this disease are also called "butterfly babies". A small clothing label is as sharp as a blade for "baby butterflies", and their skin can't stand this slight friction.
According to experts, because "Baby Butterfly" can't synthesize the structural proteins needed in the skin normally, their skin lacks the elasticity and toughness of normal human skin. A little external force may form blisters between epidermis and dermis, and then fester, just like burned skin.
The biggest wish is to look forward to curing the disease every day.
Liu Yaling felt sorry for the child, so she sent her symptoms and photos to her circle of friends through WeChat. What she didn't expect was that on February 28th, 10, some caring people in our city spontaneously organized condolences to Ma Ying's home and donated more than 9,000 yuan in cash. Huangyuan County * * and County Education Bureau also made donations; Because the child's condition is a rare case, the dermatologist of the Provincial People's Hospital will form an expert group to comprehensively analyze Ma Ying's condition and make further treatment plans; The director of the dermatology department of the Provincial Red Cross Hospital also called the Evening News reporter and said that he would do his best to help the children. Ma Shengpu, the child's father, said that at present, the child's mental condition is good. Seeing so many caring people helping her, the child was filled with gratitude. Her greatest wish is to find a hospital that can accept her and do comprehensive treatment to get rid of her illness as soon as possible.
Call for help: Teacher Liu Yaling:15110968803.
Father Ma Shengpu: 13897369996