According to a little relative, 13-year-old little man has not changed in height, but he has been able to walk independently. Although she can't say a complete paragraph, she can simply say some words and words to describe what she wants to express.

For Liu Xinglian, her wish didn't come true, but the result was a blessing in disguise. According to the current situation, as long as her family is patient enough, it is possible to take care of herself completely in the future, but she may need to live under the strange eyes of others all her life.

20 12 A special patient was admitted to Hunan Children's Hospital, whose height and weight were lower than the standard of three and a half years old normal children. In addition, her small eyes are prominent, her mouth is too big and her figure is too small. Her little mother, Liu Xinglian, chose to suffer silently and never thought of giving up. Although her family is in financial difficulties, she still undertakes the obligations and responsibilities as a mother.

I was full of expectations for the baby's birth, but the "monkey baby" surprised everyone.

Liu Xinglian, who gave birth to 1 child in 2008, was pregnant at 10 month. In 2009, she gave birth to a second baby, Xiaoxiao, which surprised everyone.

Ordinary children generally weigh 2.5 ~ 4 kg (that is, 5 ~ 8 kg) at birth and are 46.4 ~ 52.8 cm tall, while her children weigh only 2. 1 kg at birth and are only 33 cm tall, which is half smaller than normal children. Not only that, the little guy has thick body hair, lying in bed like a "Thumbelina" in a fairy tale.

When Mix was born, she was suffocated because of the lack of amniotic fluid in her mother. Thanks to the doctor's efforts, she was lucky to survive. After Mix was out of danger and all vital signs were stable, Liu Xinglian asked to be discharged early. She hopes to go home and take care of her newborn daughter.

The doctor didn't agree at first, because if there is no good medical condition to take care of the children, there will be many problems in the future. At Liu Xinglian's strong request, the doctor can only agree. When going through the discharge formalities, the doctor reminded Liu Xinlian that the child was born with nutritional deficiency and must be carefully taken care of. But Liu Xinglian thought at that time that she had raised a child, as long as she took the child with nutritional deficiency home and supplemented it every day, she would be able to take good care of the child.

Liu Xinglian took Xiaoxiao home to take care of him for some time. Xiaoxiao often has a high fever when the full moon is approaching. Liu Xinglian and her husband decided to take Xiaoxiao to the hospital for a detailed examination, trying to find out the root cause of her daughter's frequent illness. The local hospital has no countermeasures against Xiaoxiao's high fever, and the couple can only take their young children back and forth between major hospitals.

During the inspection, the doctor at the local hospital said that under normal circumstances, the child's head is relatively flat and soft. If there are symptoms such as swelling and tightness of the head, or fever and vomiting, it may be caused by intracranial infection. Most of this disease will occur in infants with congenital defects and malnutrition, which will lead to nutritional deficiency in the body, thus increasing the occurrence of this disease.

Liu Xinglian, the youngest mother, recalled that the most difficult time for her family's economy happened to be when she was pregnant. At that time, she simply neglected to supplement nutrition, and the meals she ate every day were as simple as possible. Sometimes she even doesn't eat at all for work. In order to save money for her family, she didn't buy any nutritional products during the whole pregnancy, but only checked when the child was seven months old.

At that time, because the examination results only showed that the baby was small, the doctor reminded the child that it might be lower than the normal baby standard after birth. Liu Xinglian felt that she had raised a child, and even if she had congenital defects, Liu Xinglian could take good care of herself, so she did not take active hospitalization, which led to the tragedy of being small and stunted after birth.

Looking for a doctor everywhere, life is full of hope.

After determining the minor illness, Liu Xinglian and his wife began to seek medical advice for many years. As long as they know where to cure this disease, they will not go far to Wan Li, but the reality always backfires. They always go back with hope and disappointment. Finally, they came to a larger hospital and learned that there is no treatment plan or even specific medicine to alleviate this disease in China.

In July, 2065438+02, a reporter from the Urban Channel of Hunan TV Station learned that Huaihua had a 3-year-old girl who was only 54 cm tall and weighed only 5 kg. After learning that Xiaoxiao's height was shorter than that of gul mohammed, an Indian in the Guinness Book of World Records at that time, the staff traveled 1000 kilometers, interviewed Liu Xinglian and Xiaoxiao, and helped contact authoritative experts to conduct a detailed health examination for Xiaoxiao.

At this time, Liu Xinglian felt that if more people knew about the existence of small things, they might be able to win a chance for their daughter, so they thought that they could send the information they sought through TV, which was the only life-saving straw they could seize at present and the last hope in the eyes of the couple.

May 20/kloc-participated in the talk show "Tell Your Story" hosted by Lu Yu. The program invited Dr. Meng Yan, an expert on genetic history of basic medical research in China Academy of Medical Sciences. Dr. Meng said that this small condition is obviously Sechel's syndrome, and there are only about 100 cases of this disease in the world at present.

People with this disease, in the embryonic period and growth and development period, the cell division rate is much slower than that of normal people, resulting in short stature and so on. The obvious features are the retraction of forehead, prominent eyes, large nose and mouth, but relatively small mandible.

Although the corresponding etiology and treatment methods have not been found in China, according to the inspection report provided by Liu Xinglian, the small physical condition is good, and the internal organs are all normal, and there is no deformity to varying degrees due to short stature.

According to the current medical observation, the longest life expectancy of patients with this disease is 75 years old. As long as Liu Xinglian can take good care of her, she may walk independently, speak simple language and even eat normally. As long as there are no complications, the small future is still worth looking forward to.

At the recording site, the manager of Beijing Guan Ai Life Co., Ltd. promised to continue to provide small diapers that can be used. After the program was broadcast, all walks of life were very sympathetic to the experiences of Liu Xinglian and Liang Xiaoxiao, and donated money and materials for them.

Spirit is like "Monkey King", which attracts people's attention, and the acrobatic troupe needs to pay a lot of money to cultivate it.

During that time, Liu Xinglian took Xiaoxiao to participate in TV programs almost every day. Liu Xinglian's original intention is to get Xiaoxiao's attention through these TV programs, expecting medical experts to see their existence through these programs, and even hoping to have a way to treat her daughter. Even if all this is impossible, I hope to get donations from good people and keep smiling for a while.

As an ordinary rural woman, she doesn't have a strong family to support her, let alone a husband who earns tens of thousands of dollars a day. Their meager income can't even afford a small daily diaper and some daily expenses, not to mention the medical expenses brought by a minor illness.

Unexpectedly, Liu Xinglian and Mix got more and more attention because they frequently participated in TV programs and were reported by the news media. With the attention of the outside world, some people even call Mix "the Monkey King".

20 14 Although it is still difficult to walk independently at the age of four, his teeth are basically full. He can eat snacks and food of ordinary children independently, understand what people around him say and react to others to varying degrees.

When I am happy, I will dance, clap my hands and shout. When I am angry, I will cry and express my true feelings. I like listening to music very much. As long as there is music around me, I will dance to it. Although you can't speak, you can also make a "wow" sound. These expressions undoubtedly let black-hearted businessmen smell the opportunity to make money.

Since 20 10, the state forestry administration issued a notice to stop all animal performances, the circus changed to an acrobatic troupe. In order to make more audiences willing to pay for watching, the owner of acrobatic troupe can only make a living by being ingenious, using rich creativity and performance skills, plus some lights and costumes. At this moment, they have moved their minds to their small bodies.

Liu Xinglian said that a person who claimed to be the owner of the acrobatic troupe called and said that he was willing to contribute 50,000 yuan to help Xiaoxiao, which made Liu Xinglian's family very happy. However, this boss has one condition, that is, after Liu Xinglian receives the money, Xiaoxiao must come to the circus for training, in other words, Xiaoxiao should be trained as an acrobat. This phone call made Liu Xinglian very angry, and she hung up immediately.

In order not to let the boss of the acrobatic troupe find her, she changed her phone number and residence, hoping that these black-hearted people could stay away from their families. For Liu Xinglian, even if she is born with a little congenital deficiency and needs to be raised for a lifetime, it is the meat that fell from her body and her treasure. How could she be willing to let her children go to the acrobatic troupe for strict training?

I stopped growing at the age of 3 and a half, and my living conditions were worrying.

At the beginning of 20 14, Liu Xinglian and Xiao Xiao disappeared from public view. No one knows where they have gone, and no one knows what their living conditions are now. In fact, it is not difficult for Liu Xinglian's family to make such a decision.

In an interview with Lu Yu, Liu Xinglian once said that once she took a bus with Xiaoxiao in her arms, everyone on the bus would look strange. Some even said that she looked like a "monkey" in front of Xiaoxiao, and Xiaoxiao, who could understand this, burst into tears. Liu Xinglian can only hold a smile and beg the driver to stop. After getting off the bus and leaving the environment that made her nervous, she stopped crying. This is not the first time this has happened.

According to Liu Xinglian's memory, as long as you go out with your baby in your arms, it will definitely attract the attention of people around you. Some people just watch, but others will tell her what to do behind her back. What's more, she will run to her side and ask the child why she has become like this. Every time she goes out, she will be surrounded, and it will take at least 40 minutes to get rid of these "watching" strangers. This kind of life is expected to make Liu Xinglian feel physically and mentally exhausted, so she will return to a quiet life with her baby.

However, their future life is likely to be bumpy. Liu Xinglian once said in an interview that it was difficult to adapt to the hospital environment when she was hospitalized, and she often cried, which made it impossible to sleep. Liu Xinglian can do nothing but help Xiaoxiao to resolve phlegm and find ways to make Xiaoxiao happy.

When a child suffers from pneumonia, it takes 10 hour for a doctor to inject her with 60ml of medicine, while it only takes more than ten minutes for an ordinary child to inject 60ml of medicine.

There are clear clinical manifestations on the medical website of Sechel's syndrome, one of which is that it is easy to have repeated lung infections. For such a low-income family, such a family needs to raise two children, one of whom was born with congenital diseases. The pressure that Liu Xinglian's family needs to bear can be imagined, and all this is just the beginning.

Because the small breathing tube is smaller than normal children, it is difficult for children to adapt to the surrounding environment. A little carelessness will lead to lung infection, which in turn will lead to pneumonia.

If repeated lung infections may lead to the spread of internal infections, which may lead to concurrent infections of other internal organs, then in a small case, a pneumonia that is easy to recover is enough to take her "strong" life. Even when she grows up, waiting for her is also an "embarrassing" state of life.

Grandpa died in February 20 12, and grandma was too old to take care of her daily life. Her father is a railway tunnel worker, but she was also found to be suspected of silicosis in the physical examination. There is also a daughter at home who is two years older than Xiaoxiao. Xiaoxiao goes to the hospital for treatment as long as she is sick, and spends thousands of dollars in hospital every day, which makes this already poor family face a major test.

Xiaoxiao stopped growing at the age of three, and her height will not change. Daily communication, laundry, cooking, work and even getting married and having children are all realistic problems that she must face in the future.

Finally:

The phrase "women are weak and mothers are strong" was vividly displayed by Liu Xinglian. Although she is mediocre, she has given everything she can. She not only gave physical care, but also relaxed mentally, just like a spring rain, which took away all her troubles and worries.

For the future, Liu Xinglian, like other mothers, only expects Xiaoxiao to grow up healthily and be able to walk, talk and take care of herself by herself. She might be happy.